Here is a patient assistance reference resource for cancer patients, provided by Andy Lebkuecher, Director of Support Groups for the International Myeloma Foundation (IMF):
Financial Considerations in dealing with Multiple Myeloma
LLS Patient Grant
Award: $150.00 per year, no financial documents required, no receipts necessary. Sign up with local chapter and receive a check in the mail.
Contact: Lourdes Arvelo, Sun Coast Chapter, Concourse Center, 3507 E. Frontage Road, Suite 300, Tampa, FL 33607, (813) 963-6461, 1-800-436-6889
Leukemia and Lymphoma Society Co-Pay Assistance
Award: up to $10,000 per year (year runs from July 1 – June 30). This award will pay insurance premiums, and copayment. Financial documents and proof of insurance are required to meet the income requirements (five times the poverty level; example: a single person can have income up to $50,000 and still receive the award). Typically, you make payments and then turn in receipts for reimbursements. See website or call for more details about what expenses this program covers and financial documents required.
Contact: 1-800-955-4572, The Leukemia & Lymphoma Society, Co-Pay Assistance Program, P.O. Box 12268, Newport News, VA 23612
Fax: (877)-COPAY-FAX or (877) 267-2932
Chronic Disease Fund (CDF)
Award: up to $8,500 per year (year runs January 1 – December 31). This award will pay for chemotherapy drugs. It is very drug specific and Revlimid is included on their list. After being accepted, CDF sets up an account with the specialty pharmacy and pays the pharmacy directly. Typically, you are asked to pay between $10 and $25/month in addition to their payment. Financial documents verifying income and proof of insurance are required. They will consider extending amount of award if you run out by the end of the year. You call the CDF first and get pre approval (they ask financial questions and do not reveal their financial requirements). If you meet their requirements, they will then send you an application to fill out.
Contact: 877-968-7233, http://www.cdfund.org/Patient/Program_Guideline.aspx
Patient Advocate Foundation CoPay Relief Program (PAF)
Award: up to $8,000 per year (year runs January 1 – December 31) with a 12 month look back period. The application process with this program has changed and they now have an online application process. This is an improvement over the 2 1/2 hours I waited on the phone to speak to someone when I called in 9/09! Calling for information is not as onerous so don’t hesitate to call. This program works similarly to CDF as they set up an account on your behalf with the specialty pharmacy company. Financial documents verifying income and proof of insurance are required.
Note: Beyond financial assistance: “Patient Advocate Foundation offers assistance to patients with specific issues they are facing with their insurer, employer and/or creditor regarding insurance, job retention and/or debt crisis matters relative to their diagnosis of life threatening or debilitating diseases.” (taken from PAF website) To speak to an advocate call 800-532-5274. This part of PAF is an invaluable service.
Contact: 866-512-3861, www.copays.org/contact_cpr.php
Patient Access Network Foundation (PANF)
Award: Up to $8500.00/year with a look back period of 90 days. Financial documents verifying income and proof of insurance are required. If you exhaust benefits during the calendar year, early renewal for additional benefit is possible. Call the contact number to do pre-screening prior to application.
Contact: 866-316-7263, https://www.panfoundation.org
Award: Unknown amount from this company that manufactures Revlimid. They have very strict financial guidelines in which they look at all financial information, not just income.
Contact: 888-423-5436, dial 1 then 6.
As you can see, insurance is required for most of these funds. If you do not have insurance, I would suggest you call the Patient Advocate Foundation and work with an advocate to make sure all of your options are exhausted.
Thanks, Andy! Fellow cancer patients please note: The majority of aid sources listed above are not limited to only leukemia, lymphoma or myeloma patients. Why not explore your options and ask for help? You may be pleasantly surprised what you find. Feel good and keep smiling!
Pat & Pattie